tag:blogger.com,1999:blog-7732474707546392654.post910156753347650382..comments2023-05-23T00:53:03.897-07:00Comments on Carter's FPIES Maze: The Calm Before The StormTesthttp://www.blogger.com/profile/03434368171508263817noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-7732474707546392654.post-25215575829847642622012-04-11T13:32:03.650-07:002012-04-11T13:32:03.650-07:00I've been told they do bone X-rays to look at ...I've been told they do bone X-rays to look at bone maturation. They want to see if the bones are forming and developing correctly or if the body has stopped growing altogether. Depending on how his testing goes, maybe you can connect me with the other family.Testhttps://www.blogger.com/profile/03434368171508263817noreply@blogger.comtag:blogger.com,1999:blog-7732474707546392654.post-65107984624406187422012-04-11T12:14:18.788-07:002012-04-11T12:14:18.788-07:00So sorry... I am kind of scratching my head at thi...So sorry... I am kind of scratching my head at this point since another FPIES kiddo here in PA is being looked at right now for not gaining any height. They tested her growth hormone and she has almost none. They are doing an x-ray of her bones??? <br /><br />Hang in there mamma.Nichole G.https://www.blogger.com/profile/17651879708798278799noreply@blogger.comtag:blogger.com,1999:blog-7732474707546392654.post-32927870400006315332012-04-03T19:42:25.192-07:002012-04-03T19:42:25.192-07:00Hugs and prayers! I hate to hear that he is in pai...Hugs and prayers! I hate to hear that he is in pain. :( I hope the testing sheds some light on wear to go next. I am curious about the growth thing; kids with Juliana's syndrome also grow very slowly. I have been looking into some additional nutritional stuff to help with that but I'm a long way from figuring it out.Lizhttps://www.blogger.com/profile/03701889547411279194noreply@blogger.com