Carter's FPIES Maze

Carter is our youngest son. He's the baby and the one who makes everyone smile. He also happens to suffer from FPIES or Food Protein-Induced Enterocolitis Syndrome, a chronic illness. FPIES is not who he is, but it will shape who he will become. We are journeying through this maze together; helping, learning, discovering, educating and trying not to miss those special moments along the way.

Tuesday, August 7, 2012

"I'm moving on. At last I can see, Life has been patiently waiting for me."

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“I once was lost, but now I’m found. Amazing Grace, how sweet the sound.” I heard this song last night and it awoke something in me. It has ...
1 comment:
Monday, May 7, 2012

An Update or A Rant, or Possibly Both.

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Carter’s peace from pain lasted for all of 24 hours. WE learned after a GI appointment that he had a stool impaction. So we tried to cle...
8 comments:
Wednesday, April 11, 2012

The Storm Has Hit

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A year ago yesterday we were sitting in a doctor’s office in New Jersey. That started a new chapter of doctors and specialists and tests. ...
1 comment:
Tuesday, April 3, 2012

The Calm Before The Storm

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I’ve been debating putting this update on here for silly reasons, like fear of judgment, but there have been several people asking for upd...
3 comments:
Thursday, March 8, 2012

The Pile

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“Mom, I’m out of underwear!” “Mommy, this is my last clean shirt!” “Mom, I don’t have any pants.” “Honey, are there clean socks for me so...
4 comments:
Friday, February 24, 2012

A Poison Plan

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FPIES presents so many situations that I never would have considered.   2 days ago Carter was in the garage and got hold of some chemicals....
2 comments:
Wednesday, February 15, 2012

A Probiotic Update

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Sorry I haven’t updated in awhile. We’ve been plugging along here. We had to pull spinach because his tummy just isn’t ready for it. He can...
3 comments:
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