After 575 days on GAPS, Carter is offically healed. Now he eats everything!

After 575 days on GAPS, Carter is offically healed. Now he eats everything! Well almost everything! He's still eating a real food/non processed diet for the most part and we will stay away from soy in all forms and cauliflower, mainly because Mommy is still scared of those foods. We are sticking with the 80/20 ratio of foods because now he can indulge in a cheat every once and awhile and he's just fine!

Thursday, October 14, 2010

Here We Go . . .

It has been 6 months since Carter had his first official FPIES reaction to soy milk. On that very real and terrifying day, we have found ourselves deep in the center of a twisting, winding and seemingly never-ending maze. In the beginning we had no light, no map and very little hope. We have done a lot of research and seen a lot of doctors. Carter has undergone countless blood draws, tests and procedures. Our family was shaken to its core and all the things we “knew” no longer seemed to be. But through FPIES and because of it, we have found answers, we have found light and we have drawn our own map. We still don’t know our way out and sometimes we don’t even know where we’re going. But we know we will find a way out and maybe we’ll be able to help some others too.
We have finally found Carter’s baseline. All the offending foods that made him so terribly sick have been removed from his diet. He thrives now. He is no longer surviving as he did for the first year of his life. His weight is stable. His health is great and his mood is amazing. We are in a good place now. But it wasn’t always that way . . . I will update this blog with Carter’s full history and our story up to this point. When I look back on how far we have come, I know we will not be in this maze forever.

2 comments:

  1. Don' forget his helmet time!! Our little man has been through so much but he continues to smile everyday!

    Hopefully this page will serve good use to others with FPIES. Let us help you create you map.

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  2. I love it!! Can't wait to follow Carter here- what a great beginning, what a great colorful page too! :) I love it- the FPIES maze...

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