Here We Go . . .

It has been 6 months since Carter had his first official FPIES reaction to soy milk. On that very real and terrifying day, we have found ourselves deep in the center of a twisting, winding and seemingly never-ending maze. In the beginning we had no light, no map and very little hope. We have done a lot of research and seen a lot of doctors. Carter has undergone countless blood draws, tests and procedures. Our family was shaken to its core and all the things we “knew” no longer seemed to be. But through FPIES and because of it, we have found answers, we have found light and we have drawn our own map. We still don’t know our way out and sometimes we don’t even know where we’re going. But we know we will find a way out and maybe we’ll be able to help some others too.

We have finally found Carter’s baseline. All the offending foods that made him so terribly sick have been removed from his diet. He thrives now. He is no longer surviving as he did for the first year of his life. His weight is stable. His health is great and his mood is amazing. We are in a good place now. But it wasn’t always that way . . . I will update this blog with Carter’s full history and our story up to this point. When I look back on how far we have come, I know we will not be in this maze forever.