Over two years ago, we began the heartwarming journey of expanding our family from 4 to 5. it was a time of excitement and anticipation. After Carter was born, we were soon pushed onto a different path entirely, the path of chronic illness, the path of FPIES.
It was a lonely, overwhelming and isolating experience. No one knew much about this diagnosis . Doctors couldn't offer us much help and we continued to watch our littlest boy suffer. Yet, through this maze, we found support and help from parents struggling with the same unexpected path. Together, with this amazing group of FPIES parents, a foundation has launched to make sure that no one is eve alone again in this FPIES journey, to spread awareness to doctors everywhere about the realities of this illness so that no child is ever misdiagnosed again and to give every FPIES child a voice.
I want to thank you all for the support you have given us throughout the last two years. There are no words to express out gratitude for all you have done. We invite you to visit our website, our foundation, our hope.
To those of you who have found my blog because you were sitting at your computer searching for any link, any commonality that would help you find some answers, some guidance, some support; this foundation is for you. Thank you for inspiring me and reminding me why this foundation is so important. There is a support forum on the foundation website and I invite you to log on and connect with other families just like you.
I would like to invite all of you to join the forum. It is not just a place for parents, it is a place for anyone riding the FPIES rollercoaster, and I know you've all experienced the ups and downs right along with us!
http://www.thefpiesfoundation.org/
The Dyck Family: Eric, Rebecca, Tyler, Caleb and Carter too!
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