The Last Month

We have learned so much in the last month about Carter and his FPIES.

We knew he could not eat green beans, but we discovered that he cannot even touch them.  Green bean “juice” on his hands, hand rubbed eye, eye swelled up and had greenish discharge. Benadryl helped clear that up. Leads me to believe he may have an IgE allergy to green beans, but our local allergist does not have a test for green bean. Our only option is a 3 hour drive to Stanford.

Random rash all over his face, chest and back. Still not sure the cause. It could be the yummy Real McCoy’s Shoestring potato chips. I am still waiting for a call back regarding their cross contamination practices. Or it could be eczema. It has gotten much better, for now.

Skin Prick allergy test done for egg showed a reaction to the control, which is salt water.  The egg may have been a slight positive for an actual IgE allergy, but since the control reacted, the whole test is suspect. The only choice we have is to retest, but that’s more discomfort for Carter.  

Are we developing IgE allergies now? Will this be our next battle to add to this ever changing food war?

We are trying to get Carter to take a probiotic on a regular basis. Of course he does not like the flavor and I cannot find a way to make sure he gets all of the probiotic powder required for each dose. I am going to try to make homemade coconut milk yogurt, as long as this container of coconut milk does not have mold growing in it.

On the upside, I now know how to make Pumpkin pudding and Carter loves it! He has another food that he gets excited about and one that I know is safe. For every defeat, there is an uplifting triumph. 3 cheers for Pumpkin Pudding! Hip Hip Hooray!